puraconference.org

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Ohio State University College of Medicine | PURA Syndrome FoundationAccessibi...
https://purasyndrome.org/affiliation/ohio-state-university-college-of-medicine
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Young Sibling Meet Up – September 2025 | PURA Syndrome FoundationAccessibilit...
https://purasyndrome.org/event/young-sibling-meet-up-september-2025
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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PURA Siblings Meet-Ups | PURA Syndrome FoundationAccessibility ToolsIncrease ...
https://purasyndrome.org/2024/09/pura-siblings-meet-ups
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events for March 2025 – PURA Syndrome FoundationAccessibility ToolsIncrease T...
https://purasyndrome.org/events/month/2025-03
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Day 6: Together for PURA Campaign | PURA Syndrome FoundationAccessibility Too...
https://purasyndrome.org/2024/10/day-6-together-for-pura-campaign
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events for May 2025 – PURA Syndrome FoundationAccessibility ToolsIncrease Tex...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events for April 1, 2025 – PURA Syndrome FoundationAccessibility ToolsIncreas...
https://purasyndrome.org/events/2025-04-01
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Past Events from August 19, 2023 – March 16, 2023 › Meet-Up › – PURA Syndrom...
https://purasyndrome.org/events/category/meet-up/list?eventDisplay=past
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Pediatrics | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease...
https://purasyndrome.org/specialty/pediatrics
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Epilepsy | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease T...
https://purasyndrome.org/specialty/epilepsy
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Together for PURA 2024-25 | PURA Syndrome FoundationAccessibility ToolsIncrea...
https://purasyndrome.org/category/together-for-pura-2024-25/page/2
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Blog | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease TextG...
https://purasyndrome.org/news-events/blog/page/2
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Pre-Teen Sibling Meet Up – September 2025 | PURA Syndrome FoundationAccessibi...
https://purasyndrome.org/event/pre-teen-sibling-meet-up-september-2025
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Eva Tucker | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease...
https://purasyndrome.org/author/emtucker/page/2
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events from March 16, 2023 – August 19, 2023 › Conference › – PURA Syndrome ...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events from March 16, 2023 – August 19, 2023 › Fundraiser › – PURA Syndrome ...
https://purasyndrome.org/events/category/fundraiser
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Ambassador Program | PURA Syndrome FoundationAccessibility ToolsIncrease Text...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events from March 16, 2023 – August 19, 2023 › Meet-Up › – PURA Syndrome Fou...
https://purasyndrome.org/events/category/meet-up/list
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Dr. Sirisak Chanprasert | PURA Syndrome FoundationAccessibility ToolsIncrease...
https://purasyndrome.org/clinician/dr-sirisak-chanprasert
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Research | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease T...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Donate | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease Tex...
https://purasyndrome.org/make-an-impact/donate
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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why-are-natural-history-studies-important-for-rare-diseases
https://purasyndrome.org/2024/08/why-are-natural-history-studies-important-for-rare-diseases
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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New Research! | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecre...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events for February 2026 – PURA Syndrome FoundationAccessibility ToolsIncreas...
https://purasyndrome.org/events/month
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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2025 PURA Conference Highlights | PURA Syndrome FoundationAccessibility Tools...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Dr. Ingo Helbig | PURA Syndrome FoundationAccessibility ToolsIncrease TextDec...
https://purasyndrome.org/clinician/dr-ingo-helbig
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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A New Year, another THANK YOU!!! | PURA Syndrome FoundationAccessibility Tool...
https://purasyndrome.org/2019/04/a-new-year-another-thank-you
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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2025 Conference Sponsorship Opportunities | PURA Syndrome FoundationAccessibi...
https://purasyndrome.org/2025/01/2025-conference-sponsorship-opportunities
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Together for PURA $100,000 Match! | PURA Syndrome FoundationAccessibility Too...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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PURA Family Support | PURA Syndrome FoundationAccessibility ToolsIncrease Tex...
https://purasyndrome.org/for-families/community-support
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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NEW! Adult Sibling Meet Up | PURA Syndrome FoundationAccessibility ToolsIncre...
https://purasyndrome.org/event/new-adult-sibling-meet-up
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Celena Lozano | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecre...
https://purasyndrome.org/author/celenalozano
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Dr. Lauren Dengle Sanchez | PURA Syndrome FoundationAccessibility ToolsIncrea...
https://purasyndrome.org/clinician/dr-lauren-dengle-sanchez
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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PURA Syndrome EEG Research Study – closing soon | PURA Syndrome FoundationAcc...
https://purasyndrome.org/2019/04/pura-syndrome-eeg-research-study-closing-soon
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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First Meet Up for PURA Families in India | PURA Syndrome FoundationAccessibil...
https://purasyndrome.org/event/first-meet-up-for-pura-families-in-india
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Grandparent Outreach | PURA Syndrome FoundationAccessibility ToolsIncrease Te...
https://purasyndrome.org/for-families/social-emotional-support/grandparent-outreach
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Dr. Alex Paciorkowski | PURA Syndrome FoundationAccessibility ToolsIncrease T...
https://purasyndrome.org/clinician/dr-alexander-r-paciorkowski
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Verein - PURA Syndrome Deutschland e.V.
https://pura-deutschland.de/
pura-deutschland.de
0 4
PURA Syndrome Conference
https://puraconference.org/
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Dr. Zachary Grinspan | PURA Syndrome FoundationAccessibility ToolsIncrease Te...
https://purasyndrome.org/clinician/dr-zachary-grinspan
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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News | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease TextG...
https://purasyndrome.org/category/news/page/2
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Do you need help completing your PURA Patient Registry? | PURA Syndrome Found...
https://purasyndrome.org/2024/06/do-you-need-help-completing-your-pura-patient-registry
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Dr. Guido Rubboli | PURA Syndrome FoundationAccessibility ToolsIncrease Text...
https://purasyndrome.org/clinician/dr-guido-rubboli
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Genetics | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrease T...
https://purasyndrome.org/specialty/genetics
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Published Research | PURA Syndrome FoundationAccessibility ToolsIncrease Text...
https://purasyndrome.org/research
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events from March 16, 2023 – August 19, 2023 – PURA Syndrome FoundationAccess...
https://purasyndrome.org/events/list
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Events for February 9, 2026 › Meet-Up › – PURA Syndrome FoundationAccessibil...
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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News - PURA Syndrome Deutschland e.V.
https://pura-deutschland.de/home
pura-deutschland.de
0 4
https://puraconference.org/
https://puraconference.org/
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We are excited to contribute to the first virtual PURA Syndrome conference (J...
https://www.uni-ulm.de/nawi/institute-of-pharmaceutical-biotechnology/news-information/details/article/we-are-excited-to-contribute-to-the-first-virtual-pura-syndrome-conference-june-5-12-2021
uni-ulm.de
78 591 1,325
Watch personal stories, science, and discussions online at the website
https://puraconference.org/
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Liz Astridge | PURA Syndrome FoundationAccessibility ToolsIncrease TextDecrea...
https://purasyndrome.org/author/l-astridgepura-syndrome-org
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Day 9: Wear Blue on PURA Awareness Day! | PURA Syndrome FoundationAccessibili...
https://purasyndrome.org/2024/10/day-9-wear-blue-on-pura-awareness-day
purasyndrome.org
59 8 78
Annual Conference
https://puraconference.org/
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Frequently Asked Questions
How many backlinks does puraconference.org have?
The backlinks page for puraconference.org shows all individual inbound links discovered in our crawl of the web. Each backlink represents a hyperlink on another website that points to a page on puraconference.org. Use the filters to narrow results by dofollow/nofollow status, domain rating, or anchor text.
What is a backlink?
A backlink is a hyperlink on one website that points to a page on a different website. Backlinks are one of the most important ranking factors in search engine algorithms because they act as votes of confidence from other sites. The more high-quality backlinks a domain has, the more authority search engines assign to it.
Are the backlinks to puraconference.org dofollow or nofollow?
Backlinks to puraconference.org include both dofollow and nofollow links. Dofollow links pass link equity (ranking power) to the target site, while nofollow links include a rel="nofollow" attribute that tells search engines not to pass authority. Both types contribute to a natural backlink profile, but dofollow links carry more SEO weight. You can filter by link type using the rel filter above the table.
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